Content validation of the spanish version of the Long-term Quality of Life Instrument for long-term female breast cancer survivors
e202202013
Keywords:
Breast cancer, Content validity, Long-term survivors, Quality of life, SpainAbstract
Background: The quality of life of women affected by breast cancer diagnosed 5 or more years ago has been relatively unexplored in Spain; there are no instruments for its measurement validated. The objective of the study is to translate into Spanish, culturally adapt and examine the content validity of the Spanish version of the Long-Term Quality of Life Instrument (LTQL).
Methods: The initial translation was performed by two translators with Spanish as their mother tongue carried out the translation of the questionnaire, obtaining two initial versions in Spanish (T1 and T2). An analysis of the results and elaboration of a single preliminary version in Spanish (T-1-2) were performed. The retro-translation was performed by two translators with English as their mother tongue not familiar with the original version translated the joint version (T-1-2) back into the original language (RT1 and RT2) to identify inconsistencies. Finally, a final version of the questionnaire was obtained. For content validation a committee of experts (seven women affected by breast cancer) assessed the degree of clarity, accuracy and understanding of each of the items in the questionnaire translated into Spanish, and calculated the content validity index (CVI) of the questionnaire according to Lawshe and Tristán.
Results: The LTQL questionnaire was translated into Spanish with a low discrepancy between translators. An adequate CVI higher than 0.58 was obtained in clarity (0.95), precision (0.93), comprehension (0.91) and
relevance (0.72).
Conclusions: The LTQL is a useful questionnaire in the health field for the assessment of quality of life of women survivors of long-term breast cancer.
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References
News-Medical. Epidemiología del cáncer de pecho [Internet]. [consultado 2019 Jan 10]. Disponible en: https://www.news-medical.net/health/Breast-Cancer-Epidemiology-(Spanish).aspx
ECIS - European Cancer Information System. Incidence and mortality 2020 [Internet]. 2020 [consultado 2021 Mar 12]. Disponible en: https://ecis.jrc.ec.europa.eu/explorer.php?$0-0$1-All$4-2$3-29$6-0,85$5-2008,2008$7-7$2-All$CEstByCountry$X0_8-3$X0_19-AE27$X0_20-No$CEstBySexByCountry$X1_8-3$X1_19-AE27$X1_-1-1$CEstByIndiByCountry$X2_8-3$X2_19-AE27$X2_20-No$CEstRelative$X3_8-3$X3_9-AE27$
American Cancer Society (ACS). Cancer Facts & Figures 2005 [Internet]. Atlanta; 2005 [consultado 2019 Jan 10]. Disponible en: https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/annual-cancer-facts-and-figures/2005/cancer-facts-and-figures-2005.pdf
Gotay CC, Muraoka MY. Quality of life in long-term survivors of adult-onset cancers. J Natl Cancer Inst [Internet]. 1998 May 6 [consultado 2018 Nov 9];90(9):656–667. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/9586662
Bray F, Ren J-SS, Masuyer E, Ferlay J. Global estimates of cancer prevalence for 27 sites in the adult population in 2008. Int J Cancer [Internet]. 2013 Mar 1 [consultado 2018 Jul 11];132(5):1133–1145. Disponible en: https://pubmed.ncbi.nlm.nih.gov/22752881/
SEOM. Las cifras del cáncer en España 2018 [Internet]. 2018. Disponible en: https://seom.org/seomcms/images/stories/recursos/Las_Cifras_del_cancer_en_Espana2018.pdf
Allemani C, Matsuda T, Di Carlo V, Harewood R, Matz M, Nikšić M et al. Global surveillance of trends in cancer survival 2000–14 (CONCORD-3): analysis of individual records for 37 513 025 patients diagnosed with one of 18 cancers from 322 population-based registries in 71 countries. Lancet [Internet]. 2018 Mar 17 [consultado 2018 Nov 15];391(10125):1023–75. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/29395269
Wilson IB, Cleary PD. Linking Clinical Variables With Health-Related Quality of Life: A Conceptual Model of Patient Outcomes. JAMA J Am Med Assoc [Internet]. 1995 [consultado 2021 Mar 19];273(1):59–65. Disponible en: https://pubmed.ncbi.nlm.nih.gov/7996652/
Ferrell BR, Grant M, Funk B, Garcia N, Otis-Green S, Schaffner MLJ. Quality of life in breast cancer. Cancer Pract [Internet]. 1996 [consultado 2018 Nov 14];4(6):331–340. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/9128486
Krigel S, Myers J, Befort C, Krebill H, Klemp J. Cancer changes everything! Exploring the lived experiences of women with, metastatic breast cancer. Int J Palliat Nurs [Internet]. 2014 [consultado 2021 Mar 19];20(7):334–342. Disponible en: https://pubmed.ncbi.nlm.nih.gov/25062379/
Mosher CE, Johnson C, Dickler M, Norton L, Massie MJ, Duhamel K. Living with metastatic breast cancer: A qualitative analysis of physical, psychological, and social sequelae. Breast J [Internet]. 2013 May [consultado 2021 Mar 19];19(3):285–292. Disponible en: https://pubmed.ncbi.nlm.nih.gov/23528206/
Weathers E, Mccarthy G, Coffey A. Concept Analysis of Spirituality: An Evolutionary Approach. Nurs Forum [Internet]. 2016 Apr 1 [consultado 2021 Mar 19];51(2):79–96. Disponible en: https://pubmed.ncbi.nlm.nih.gov/25644366/
Puchalski CM, King SDW, Ferrell BR. Spiritual Considerations [Internet]. Vol. 32, Hematology/Oncology Clinics of North America. W.B. Saunders; 2018 [consultado 2021 Mar 19]. p. 505–517. Disponible en: https://pubmed.ncbi.nlm.nih.gov/29729785/
Wyatt GKH, Friedman LL. Development and testing of a quality of life model for long-term female cancer survivors. Qual Life Res. 1996;5(3):387–394.
Wyatt G, Kurtz ME, Friedman LL, Given B, Given CW. Preliminary testing of the Long-Term Quality of Life (LTQL) instrument for female cancer survivors. J Nurs Meas [Internet]. 1996;4(2):153–170. Available from: http://search.proquest.com/docview/619086902?accountid=14512%5Cnhttp://ucelinks.cdlib.org:8888/sfx_local?url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&genre=article&sid=ProQ:ProQ%3Apsycinfo&atitle=Preliminary+testing+of+the+Long-Term+Qualit
Wyatt G, Friedman LL. Long-term female cancer survivors: Quality of life issues and clinical implications. Cancer Nurs [Internet]. 1996 Feb [consultado 2018 Nov 9];19(1):1–7. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/8904381
Lawshe CH. a Quantitative Approach To Content Validity. Pers Psychol. 1975;28(4):563–575.
Tristán A. Modificación del modelo de Lawshe para el dictamen cuantitativo de la validez de contenido de un instrumento objetivo. In: Avances en Medición Vol 6. 2008. p. 37–48.
Hernández R, Fernandez-Collado C, Baptizta P. Metodo-logía de la investigación. Mc Graw Hill. 2006. p. 839.
Akram M, Iqbal M, Daniyal M, Khan AU. Awareness and current knowledge of breast cancer. Biol Res [Internet]. 2017 Dec 2 [consultado 2018 Nov 13];50(1):33. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/28969709
Kamp K, Flanigan M, Thana K, Terpstra J, Wyatt G, Sikorskii A. Expanding Application of the Long-Term Quality of Life Instrument to the Population of Women Undergoing Treatment of Advanced Breast Cancer. Cancer Nurs. 2021;44(2):E76–82.
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