Wish to hasten death in home palliative care. Look for your seven percent
e202110138
Keywords:
Wish to die, Wish to hasten death, End-of-life, Home-care, Palliative care, Advanced illness, Ethics of palliative care, Spirituality, Euthanasia, Assisted suicideAbstract
Background: The wish to hasten death has been little researched in the area of Mediterranean countries and we are not aware of specific studies on its particularities in home care in our setting. The aim of this work was to investigate the prevalence and evolution of wish to hasten death in home care, analysing its relationship with physical, emotional, spiritual, ethical and social-family unrest.
Methods: Longitudinal observational study in palliative home care in Catalonia. 43 teams agreed on the level of complexity after the first visit and after the discharge of the patient with the HexCom model, which classifies the desire to anticipate death into Low complexity (no or sporadic manifestation); Medium (persistent desire that requires specific treatment); or High (persistent desire that is considered potentially refractory). For the comparison of proportions, Pearson’s Chi-squared test was used and a multivariate logistic regression analysis was performed, in which the dependent variable corresponded to the desire to hasten initial death. The level of significance was p≤0.05.
Results: The total number of patients included in this study was 1,677, of whom 1,169 (69.7%) were oncologic. The prevalence of desire to hasten death was 6.67%. It was related to spiritual distress, especially lack of meaning (OR 3.25) and lack of connection (OR 3.81), to psychoemotional distress (OR 2.34) and to ethical distress. Protective factors were spiritual distress in relation to transcendence (OR 0.50), the caregiver being a partner (OR 0.50) and being cared for by a team that included psychology and social work (OR 0.34). The desire to anticipate death is stable in 71.6% of patients.
Conclusions: The desire to anticipate death is a changing and complex phenomenon that can emerge at any time. The presence of psycho-emotional, spiritual-existential and ethical discomfort, especially in patients without a partner, should make us take a proactive attitude to identify it early.
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Copyright (c) 2021 Xavier Busquet-Duran, Eva María Jiménez-Zafra, Emilio José Martínez-Losada, Magda Tura-Poma, Joana Llobera-Estrany, Olga Bosch-de la Rosa , Maria Dolores Leston-Lado, Anna Moragas-Roca, Susana Martin Moreno, Ana Isabel López-Garcia, Núria Salamero-Tura, Sílvia Crespo-Ramírez, Josep Maria Manresa-Domínguez, Pere Torán-Monserrat
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