Validation of the “Palliative Care Difficulties Scale (PCDS)” questionnaire in the spanish population about health professionals´ difficulties in palliative care

e201911106

Authors

  • Sofía Vidal Serrano Servicio de Medicina. Hospital San Juan de Dios del Aljarafe. Sevilla. España.
  • Sergio R. López Alonso Dispositivo de Cuidados Críticos y Urgencias. Distrito Sanitario Málaga. Servicio Andaluz de Salud. Málaga. España. / Centro Universitario de Enfermería “San Juan de Dios”. Universidad de Sevilla. Bormujos. Sevilla. España.
  • María del Rocío Fernández Ojeda Servicio de Medicina. Hospital San Juan de Dios del Aljarafe. Sevilla. España. / Centro Universitario de Enfermería “San Juan de Dios”. Universidad de Sevilla. Bormujos. Sevilla. España.
  • Juan Ramón Lacalle Remigio Departamento de Medicina Preventiva y Salud Pública. Universidad de Sevilla. España.

Keywords:

Palliative care, Palliative medicine, Palliative care nursing at the end of life, Terminal care, Validation studies

Abstract

Background: Knowing the difficulties in the application of palliative care would allow us to propose improvement strategies. The objective was to determine the metric properties of the Palliative Care Difficulties Scale (PCDS) translated and adapted to Spanish.

Methods: An instrumental validation study was designed in a regional hospital and primary care centers of a health district. 148 health professionals participated. Sociodemographic and professional variables were collected by a questionnaire about palliative care training and experience, as well as items from the PCDS. The statistical analysis was done with the SPSS 19.0 program.

Results: It was verified the comprehension of the translation and back translation of the questionnaire, in a pilot study with 30 professionals. Subsequently, in the survey of 118 professionals, an endorsement frequency of not more than 51% was found for content validity. As for the construct validity, the calculation of the sample adequacy, using the Kaiser-Meyer-Olkin index obtained a value of 0.76. The principal component factor analysis reached a total variance of 73.88% with all items. The correlation of factors ranged from 0.2 to 0.3; so the Varimax rotation was established. The correlation between the items of each factor was higher than 0.6. For the reliability analysis, the internal consistency obtained a Cronbach alpha value of 0.87. In the test-retest reliability analysis, Spearman’s Rho correlation for the scale was 0.81.

Conclusions: It was obtained an instrument translated and culturally adapted to Spanish, with adequate validity and reliability to measure difficulties in palliative care.

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References

Kutner JS, Metcalfe T, Vu KO, Fink R, Nelson-Marten P, Armstrong JD et al. Implementation of an ad hoc hospital-based palliative care consult service. J Pain Symptom Manage [Internet]. 2004 Nov;28(5):526–8. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/15504629.

Sánchez-García MR, Moreno-Rodríguez M, Hueso-Montoro C, Campos-Calderón C, Varella-Safont A, Montoya-Juárez R. [Facilitators and barriers regarding end of life care at nursing homes: A focus group study]. Aten primaria [Internet]. 2017 May;49(5):278–85. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/27890302.

Benítez del Rosario MA, Salinas Martín A, Asensio Fraile A, Armas J. [Palliative care in primary care: the opinion of professionals]. Aten primaria [Internet]. 1999 Mar 15;23(4):187–91. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/10333601.

Hirooka K, Miyashita M, Morita T, Ichikawa T, Yoshida S, Akizuki N et al. Regional medical professionals’ confidence in providing palliative care, associated difficulties and availability of specialized palliative care services in Japan. Jpn J Clin Oncol [Internet]. 2014 Mar;44(3):249–56. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/24407834.

Nakazawa Y, Miyashita M, Morita T, Umeda M, Oyagi Y, Ogasawara T. The palliative care self-reported practices scale and the palliative care difficulties scale: reliability and validity of two scales evaluating self-reported practices and difficulties experienced in palliative care by health professionals. J Palliat Med [Internet]. 2010 Apr;13(4):427–37. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/20384502.

Moss AH, Demanelis AR, Murray J, Jack J. Barriers to quality end-of-life care in West Virginia ICU units: physicians’ and nurses’ prospectives. W V Med J [Internet]. 2005 Sep-Oct; 101(5):200–4. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/16422267.

VanGeest JB. Process evaluation of an educational intervention to improve end-of-life care: The Education for Physicians on End-of-Life Care (EPEC) Program. Am J Hosp Palliat Med [Internet]. 2001 Jul 1;18(4):233–8. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/11467097.

Steginga SK, Dunn J, Dewar AM, McCarthy A, Yates P, Beadle G. Impact of an intensive nursing education course on nurses’ knowledge, confidence, attitudes, and perceived skills in the care of patients with cancer. Oncol Nurs Forum [Internet]. 2005 Mar 5;32(2):375–81. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/15759074.

Bradley EH, Cicchetti D V, Fried TR, Rousseau DM, Johnson-Hurzeler R, Kasl S V et al. Attitudes about care at the end of life among clinicians: a quick, reliable, and valid assessment instrument. J Palliat Care [Internet]. 2000;16(1):6–14. Available from: http://www.ncbi.nlm.nih.gov/pubmed/10802958.

Cramer LD, McCorkle R, Cherlin E, Johnson-Hurzeler R, Bradley EH. Nurses’ attitudes and practice related to hospice care. J Nurs Scholarsh an Off Publ Sigma Theta Tau Int Honor Soc Nurs [Internet]. 2003;35(3):249–55. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/14562493.

Castañeda H, Acevedo G, Garza R. Traducción de instrumentos para investigación en salud. Desarro Cient en Enferm. 2007;15(1):41–2.

Marrugat J, Vila J. Calculadora de Tamaño muestral GRANMO (versión 7.12) [sede Web]. Institut Municipal d’Investigació Mèdica, Barcelona: Antaviana; abril 2012. Disponible en: http://www.imim.cat/ofertadeserveis/software-public/granmo/.

Brace N, Kemp R, Snelgar R. Brace N, Kemp R, Snelgar R (2003). SPSS for psychologists: A guide to data analysis using SPSS for Windows. 2nd Ed, MacMillan, New York. 2nd ed. New York: MacMillan; 2003. Disponible en: https://books.google.es/books/about/SPSS_for_Psychologists.html?id=BmcrboKmQn4C&redir_esc=y.

Streiner D, Norman G, Cairney J. Health measurement scales: a practical guide to their development and use (5th edition) [Internet]. 5th ed. Australian and New Zealand Journal of Public Health. Oxford: Oxford University Press; 2015. Disponible en: http://doi.wiley.com/10.1111/1753-6405.12484.

Nunnally JC, Bernstein IH. Psychometric theory [Internet]. New York: McGraw-Hill; 1994. (McGraw-Hill series in psychology). Disponible en: https://books.google.es/books?id=r0fuAAAAMAAJ.

IBM Corp. Released 2010. IBM SPSS Statistics for Windows, Version 19.0. Armonk, NY: IBM Corp.

Wool C, Northam S. The Perinatal Palliative Care Perceptions and Barriers Scale Instrument©: development and validation. Adv Neonatal Care. 2011 Dec;11(6):397-403. Disponible en: https://www.ncbi.nlm.nih.gov/pubmed/22123471.

Dima AL. Scale validation in applied health research: tutorial for a 6-step R-based psychometrics protocol. Health Psychology and Behavioral Medicine 2018; 6: 136-161. DOI: 10.1080/21642850.2018.1472602.

Nakazawa Y, Kato M, Miyashita M, Morita T, Kizawa Y. Changes in nurses’ knowledge, difficulties, and self-reported practices toward palliative care for cancer patients in Japan: an analysis of two nationwide representative surveys in 2008 and 2015. J Pain Symptom Manage [Internet]. 2017 Sep 14; Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/28919540.

Nakazawa Y, Yamamoto R, Kato M, Miyashita M, Kizawa Y, Morita T. Improved knowledge of and difficulties in palliative care among physicians during 2008 and 2015 in Japan: Association with a nationwide palliative care education program. Cancer . 2018 Feb 1;124(3):626–35. Available from: http://doi.wiley.com/10.1002/cncr.31071

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Published

2019-11-05

How to Cite

1.
Vidal Serrano S, López Alonso SR, Fernández Ojeda M del R, Lacalle Remigio JR. Validation of the “Palliative Care Difficulties Scale (PCDS)” questionnaire in the spanish population about health professionals´ difficulties in palliative care: e201911106. Rev Esp Salud Pública [Internet]. 2019 Nov. 5 [cited 2025 May 17];93:10 páginas. Available from: https://ojs.sanidad.gob.es/index.php/resp/article/view/1145

Issue

Vol. 93 (2019)

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Copyright (c) 2019 Sofía Vidal Serrano, Sergio R. López Alonso, María del Rocío Fernández Ojeda, Juan Ramón Lacalle Remigio

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