International Patient-Reported Indicators Surveys: The PaRIS study protocol in Spain
e202309072
Keywords:
Patient Reported Outcome Measures, Patient Reported Experience Measures, PROMS, PREMS, Primary Health Care;, PaRIS SurveyAbstract
BACKGROUND // The PaRIS Survey is an initiative led by the Organization for Economic Cooperation and Development in twenty-one countries, including Spain, to promote people-centred health care. The objective of the study aimed to describe PROMS and PREMS (Patient Reported Outcomes and Experience Measures, respectively) from patients who were in contact with Primary Care Centres, in order to establish a set of reliable, valid and internationally comparable indicators.
METHODS // A cross-sectional study with two questionnaires will be carried out: one applied online for professionals from Primary Care Centres and another by telephone or online for patients aged forty-five and older of the same Health Care Centres. The domains covered are: characteristics of the Health Centre and of the professionals; sociodemographic characteristics of the patients; lifestyles; health care capacities; PROMs and PREMs.
CONCLUSIONS // The study offers a unique opportunity to evaluate the health outcomes and experiences of the care received in Primary Care from patient’s perspective. This information is essential to help policymakers better understand the performance of their health system and how it could be improved, particularly in relation to chronic care in Primary Care.
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References
Van den Berg M and Guanais F. Shared Journey Towards People-Centred Health Systems. HealthManagement 2020; 20:678-680. https://healthmanagement.org/uploads/article_attachment/shared-journey-towards-people-centred-health-systems.pdf
De Boer D, Van den Berg M, Ballester M et al. Assessing the outcomes and ex-periences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey). BMJ Open. 2022 Sep 19;12(9): e061424. doi: https://dx.doi.org/10.1136/bmjopen-2022-061424
Boletín Oficial del Estado. Acuerdo de Participación. Encuestas de Indicadores Proporcionados directamente por los pacientes (Paris), Encuesta sobre resulta-dos y experiencias de los pacientes con enfermedades crónicas, hecho en Ma-drid y París el 13 y 16 de diciembre de 2021. BOE núm. 19, de 22-01-2022. Dis-ponible en: https://www.boe.es/diario_boe/txt.php?id=BOE-A-2022-1016
World Health Organization. Noncommunicable diseases. Factsheet, 2021. En: World Health Organization [en línea] [consultado el 11/10/2022]. Disponible en: https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases
Violan C, Foguet-Boreu Q, Flores-Mateo G et al. Prevalence, determinants and patterns of multimorbidity in primary care: a systematic review of observation-al studies. PLoS One 2014; 9: e102149.
Starfield B, Shi L, Macinko J. Contribution of primary care to health systems and health. Milbank Q. 2005;83(3):457-502. doi: https://dx.doi.org/10.1111/j.1468-0009.2005.00409.x. PMID: 16202000; PMCID: PMC2690145.
Ministerio de Sanidad. Barómetro Sanitario 2019. Ministerio de Sanidad, Ma-drid, [2021]. NIPO 133-21-056-1. Disponible en: https://www.sanidad.gob.es/estadEstudios/estadisticas/inforRecopilaciones/barometro/home.htm
Portal estadístico. Base de Datos de Clínicos de Atención Primaria (BDCAP). En: Ministerio de Sanidad [en línea] [consultado el 27/09/2022]. Disponible en: https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/base-de-datos-de-clinicos-de-atencion-primaria-bdcap
Ministerio de Sanidad. Encuesta Europea de Salud en España EESE 2020. Minis-terio de Sanidad, Madrid, [2021]. NIPO:133-21-028-7 Disponible en: https://www.sanidad.gob.es/estadEstudios/estadisticas/EncuestaEuropea/Enc_Eur_Salud_en_Esp_2020.htm
Organisation for Economic Co-operation and Development. Recommendations to OECD ministers of health from the high level reflection group on the future of health statistics, 2017. Disponible en: www.oecd.org/health/health-systems/Recommendations-from-highlevel-reflection-group-on-the-future-of-health-statistics.pdf
De Bienassis K, Kristensen S, Hewlett E et al. Measuring patient voice matters: setting the scene for patient-reported indicators. Int J Qual Health Care. 2021 Feb 20; 34(Suppl 1): ii3–ii6. doi: https://dx.doi.org/10.1093/intqhc/mzab002. Erratum in: Int J Qual Health Care. 2022 Mar 28;34(1)
Olde Rikkert MGM, van der Wees PJ, Schoon Y et al. Using Patient Reported Outcomes Measures to Promote Integrated Care. Int J Integr Care. 2018 Apr 19; 18(2):8. doi: https://dx.doi.org/10.5334/ijic.3961. PMID: 30127692; PMCID: PMC6095063.
Damman OC, Jani A, de Jong BA et al. The use of PROMs and shared decision-making in medical encounters with patients: An opportunity to deliver value-based health care to patients. J Eval Clin Pract. 2020 Apr;26(2):524-540. doi: https://dx.doi.org/10.1111/jep.13321. Epub 2019 Dec 15. PMID: 31840346; PMCID: PMC7155090.
Ministerio de Sanidad. Informe Anual del Sistema Nacional de Salud 2020-2021. Ministerio de Sanidad, Madrid, [2022]. NIPO:133-20-031-6 Disponible en: https://www.sanidad.gob.es/estadEstudios/estadisticas/sisInfSanSNS/tablasEstadisticas/InfAnualSNS2020_21/INFORME_ANUAL_2020_21.pdf
Porter I, Rijken M, Groene O. The International survey of people living with chronic conditions (Paris survey): development of the conceptual framework. Qual Life Res 2021;30:S48.
Organisation for Economic Co-operation and Development. Patient-Reported indicators survey (Paris): measuring what matters. Public version of the revised proposal submitted to the health Committee. OECD, 2018. Disponible en: https://one.oecd.org/document/DELSA/HEA(2018)1/en/pdf
Harkness J, van de Vijver FJR, Johnson TP. Questionnaire design in comparative research. In: Harkness J, van de Vijver FJR, Mohler PP, eds. Cross-Cultural survey methods. Hoboken, NJ: Wiley & Sons, 2003: 19-34.
Schäfer WLA, Boerma WGW, Kringos DS et al. QUALICOPC, a multi-country study evaluating quality, costs and equity in primary care. BMC Fam Pract 2011; 12: 115.
Howell D, Fitch M, Bakker D et al. Core domains for a person-focused outcome measurement system in cancer (PROMS-Cancer Core) for routine care: a scop-ing review and Canadian Delphi Consensus. Value Health. 2013 Jan-Feb;16(1):76-87. doi: https://dx.doi.org/10.1016/j.jval.2012.10.017
Morton RL, Lioufas N, Dansie K et al. Use of patient-reported outcome measures and patient-reported experience measures in renal units in Australia and New Zealand: A cross-sectional survey study. Nephrology (Carlton). 2020 Jan;25(1):14-21. doi: https://dx.doi.org/10.1111/nep.13577. Epub 2019 May 1.
Ingelsrud LH, Wilkinson JM, Overgaard S et al. How do Patient-reported Out-come Scores in International Hip and Knee Arthroplasty Registries Compare? Clin Orthop Relat Res. 2022 Oct 1;480(10):1884-1896. doi: https://dx.doi.org/10.1097/CORR.0000000000002306. Epub 2022 Jul 8.
De Bienassis K, Kristensen S, Hewlett E et al. Patient-reported indicators in mental health care: towards international standards among members of the OECD. Int J Qual Health Care. 2021 Mar 6;34 (Suppl 1): ii7–ii12. doi: https://dx.doi.org/10.1093/intqhc/mzab020. Erratum in: Int J Qual Health Care. 2022 Mar 28;34(1)
Latasa P, Gandarillas AM, Ordobás M. Tendencias y desigualdades sociales en el cribado de cáncer de cérvix y cáncer de mama en la Comunidad de Madrid durante el periodo 1995-2010 a partir del Sistema de Vigilancia de Factores de Riesgo de enfermedades no transmisibles (SIVFRENT-A). An Sist Sanit Navar. 2015 Jan-Apr;38(1):21-31. Spanish. doi: https://www.dx.doi.org/10.23938/ASSN.0050. PMID: 25963455.
Marquet O, Miralles-Guasch C. Neighbourhood vitality and physical activity among the elderly: The role of walkable environments on active ageing in Bar-celona, Spain. Soc Sci Med. 2015 Jun;135:24-30. doi: https://dx.doi.org/10.1016/j.socscimed.2015.04.016. Epub 2015 Apr 22. PMID: 25939073.
Del Busto Bonifaz S, de Haro Gazquez D. Arranz Álvarez B et al. Oncobarómetro 2020. Asociación Española contra el Cáncer 2021. Disponible en: https://observatorio.contraelcancer.es/sites/default/files/informes/ONCOBAROMETRO_0.pdf
Instituto Nacional de Estadística. Encuesta sobre Equipamiento y Uso de Tecno-logías de Información y Comunicación (TIC) en los Hogares. INE, 2022. Disponi-ble en: https://www.ine.es/prensa/tich_2022.pdf
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Copyright (c) 2023 Ana Clara Zoni Matta, Myrian Pichiule Castañeda, Montserrat Neira León, Juan Hoyos Miller, Pilar Illlarramendi, Marta Ballester Santiago, Rosa Suñol Sala, Michael van den Berg, Marta Aguilera Guzmán
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